Advocacy Partners
AXIS Medical Education recognizes the need to provide trusted patient and caregiver resources as a part of our educational mission to improve the outcomes of patients. As such, AXIS partners with many renowned advocacy groups/associations. Clinicians who participate in our educational activities find value in having access to recommended patient education and caregiver resources in specific disease areas. AXIS finds value in these partnerships because they round out our core clinical curriculum with validated and relevant supplemental resources for busy clinicians and their patients.
In the spirit of true collaboration, AXIS works with these groups to provide a distribution channel for their patient and caregiver educational materials directly to those who are treating that specific disease. In addition, AXIS provides our advocacy partners with the opportunity to incorporate their logo on all of the educational activity collateral materials to enhance their exposure to relevant healthcare professionals and their patients. We also include detailed information with regards to each advocacy groups mission, vision and value toward supporting patients in their treatment journey.
- American Liver Foundation
The American Liver Foundation takes a leadership role in advocating on behalf of the millions of Americans living with liver disease and their families. Their mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease.
To learn more about The American Liver Foundation, visit www.liverfoundation.org. - Axis Advocacy
Axis Advocacy is a 5013c in California that is uniquely positioned to address the Sickle Cell Disease community and Stakeholders with the purpose of addressing their broad needs and concerns. From advocating for federal laws to assisting individual patients at multiple points of care, Axis is committed to improving the lives of patients and community members nationwide. This is more important now as we are in the intersection of racial bias and inequities, financial burdens, political division, opioid hysteria, and new medical advancements.
To learn more about Axis Advocacy, visit www.axisadvocacy.org.
- Bladder Cancer Advocacy Network
Bladder Cancer Advocacy Network’s (BCAN) mission is to increase public awareness about bladder cancer, advance bladder cancer research, and provide educational and support services for the bladder cancer community.
BCAN serves as the leading voice for bladder cancer in the U.S., providing resources to not only those diagnosed with the disease but their families, caregivers and the medical community united in support of people touched by the disease. The organization is setting the agenda for bladder cancer by promoting and funding collaborative and cutting-edge research programs and providing critical patient support and education services. Each year, it provides thousands of patients, caregivers and the medical community with the educational resources and support services they need to navigate their bladder cancer journey. BCAN works collaboratively with the medical and research professionals who are dedicated to the prevention, diagnosis, and treatment of bladder cancer and empowers the patient community by allowing them to share experiences with others, and to participate in building awareness of the need for a cure.
BCAN was founded in 2005 by Diane Zipursky Quale and her late husband, John Quale, a bladder cancer patient who lost his battle to the disease in June 2008. At present, BCAN is the only national organization devoted to advancing bladder cancer research and supporting those impacted by the disease. Since its founding, BCAN has been on the front-lines advocating for greater public awareness and increased funding for research to identify effective treatment and eventually, a cure for bladder cancer.
Please visit the Bladder Cancer Advocacy Network website at www.bcan.org. - Cancer Care
Founded in 1944, CancerCare® is the leading national organization providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer. Our comprehensive services include counseling and support groups over the phone, online and in-person, educational workshops, publications and financial and co-payment assistance. All CancerCare services are provided by oncology social workers and world-leading cancer experts.
CancerCare programs and services help 170,000 people each year, in addition to welcoming 1.5 million visits to our websites and distributing 800,000 publications. In the past year, CancerCare provided more than $22.3 million in financial assistance. The size and scope of CancerCare has grown tremendously since 1944, but the organization remains committed to providing help and hope to anyone affected by cancer.
To learn more about CancerCare, visit www.cancercare.org. - Colon Cancer Alliance
The Colon Cancer Alliance is the leading national patient advocacy organization dedicated to increasing screening rates and survivorship. Its vision is for a world free of colon cancer where education, early detection and treatment lead to survivorship for all. The pillars of Colon Cancer Alliance are: 1) Prevention; 2) Research – an agenda that includes the following: advancing biomarker research, understanding why those under 50 are increasingly diagnosed with colon cancer, decreasing late-state diagnosis of high-risk populations, closing the referral gap for screening and diagnostic testing, and advancing long-term survivorship psychosocial concerns; and 3) Patient Support featuring the latest information, expert resources, and cutting-edge tools to help patients make it through their diagnosis.
To learn more about colon Cancer Alliance, visit www.ccalliance.org. - Debbie’s Dream Foundation
Debbie’s Dream Foundation: Curing Stomach Cancer (DDF) is a 501(c)(3) non-profit organization dedicated to raising awareness about stomach cancer, advancing funding for research, and providing education and support internationally to patients, families, and caregivers. Debbie’s Dream Foundation seeks as its ultimate goal to make the cure for stomach cancer a reality.
DDF was founded in 2009 by Debbie Zelman after she was diagnosed with stage IV incurable stomach cancer in 2008 and given only weeks to live. Zelman immediately began to educate herself about this disease and to seek the best available care. When she responded favorably to her treatment, Debbie founded DDF which now has 29 chapters throughout the United States, Canada, and Germany and a Medical Advisory Board of renowned doctors from across the country and internationally.
To learn more about DDF, please visit us at www.DebbiesDream.org. - Fight Colorectal Cancer
Fight Colorectal Cancer (Fight CRC) is a leading patient-empowerment and advocacy organization in the United States, providing balanced and objective information on colon and rectal cancer research, treatment, and policy. We are relentless champions of hope, focused on funding promising, high-impact research endeavors while equipping advocates to influence legislation and policy for the collective good. Learn more at FightCRC.org. - Gastric Cancer Foundation
The Gastric Cancer Foundation (GCF) is focused exclusively on helping people fight gastric cancer. Through education, research, support and advocacy, the organization is dedicated to improving the lives of people who are affected by the disease and working with leading researchers to find a cure.
With relatively little funding historically directed toward gastric cancer, there has not been adequate research to study the genetics of the disease or its underlying biology. GCF has stepped in to bridge this gap and advance the field of gastric cancer research. GCF launched the country’s first comprehensive Gastric Cancer Registry in 2011 in collaboration with Stanford’s Comprehensive Cancer Center, and the organization is the primary contributor to a Stanford University Genome Technology Center project that is creating a digital version of the gastric cancer genome based on DNA sequencing. In 2014 GCF launched a new partnership with the American Gastroenterological Association (AGA) Research Foundation to endow the AGA–Gastric Cancer Foundation Research Scholar Award in Gastric and Esophageal Cancer to support research by outstanding young investigators in the field.
To learn more about Gastric Cancer Foundation, visit www.gastriccancer.org. - GRACE
The Global Resource for Advancing Cancer Education (GRACE) is a nonprofit organization that was developed as a means of improving the overall medical care for cancer patients by democratizing cutting edge information on optimal cancer management and providing it directly to patients. GRACE recognizes that while there is an overwhelming amount of new information available to physicians -- actually more than they can integrate -- patients and their families often have a deep interest in their own care and often have the time and motivation to ensure that they are receiving the best treatment possible.
Although there are many Web sites and other resources that provide information to patients from healthcare professionals, the information is often bland and nonspecific (i.e., “Chemotherapy is the main treatment for advanced lung cancer. Your doctor may talk with you about this approach.”). While there are often discussions of specific treatments on patient and caregiver-moderated websites and other resources, the quality of the information is variable. The potential for misinformation to be perpetuated by people not qualified to discuss medical details is a significant problem.
GRACE provides a forum for patient and caregiver discussions that are evidence-based and offers a wealth of thought leader-led updates regarding the transformation of cancer care and important treatment updates. To learn more about GRACE, visit www.cancergrace.org. - Imerman Angels
To provide personalized connections that enable one-on-one support among cancer fighters, survivors and caregivers. Through our unique matching process, Imerman Angels partners anyone seeking cancer support with someone just like you – a “Mentor Angel”. A Mentor Angel is a cancer survivor or survivor’s caregiver who is the same age, same gender, and most importantly who has faced the same type of cancer. Our service is absolutely free and helps anyone touched by any type of cancer, at any cancer stage level, at any age, living anywhere in the world.
These one-on-one relationships give a cancer fighter or caregiver the chance to ask personal questions and get support from someone who has been there before. Mentor Angels can lend support and empathy and help cancer fighters and caregivers navigate the system, determine their options and create their own support systems. Frequently, caregivers experience feelings similar to those of the person facing cancer. Mentor Angels can relate while being sensitive to the experience and situation.
To learn more about IMERMAN Angels, visit www.imermanangels.org. - The Kidney Cancer Association
The Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. It is the world’s first international charity dedicated specifically to the eradication of death and suffering from renal cancers. It is also by far the largest organization of its kind, with members in more than 100 countries. We fund, promote, and collaborate with the National Cancer Institute (NCI), American Society for Clinical Oncology (ASCO), American Urological Association (AUA), and other institutions on research projects. We educate families and physicians, and serve as an advocate on behalf of patients at the state and federal levels in the United States and globally.
To learn more about The Kidney Cancer Association, visit www.kidneycancer.org. - Mesothelioma Hope
Mesothelioma Hope was founded by a group of medical and legal advocates whose goal is to provide a comprehensive database for people diagnosed with mesothelioma. Today, Mesothelioma Hope works to assist those directly affected by mesothelioma and helps families, siblings, and other caregivers provide support.
To learn more about Mesothelioma Hope, visit https://www.mesotheliomahope.com/resources/support-groups/ - The Mesothelioma Veterans Center
The Mesothelioma Veterans Center provides information about treatment, clinical trials, and VA benefits to veterans suffering from asbestos-related illnesses. We’ve had the honor of helping hundreds of veterans pursue compensation after developing mesothelioma or asbestos-related lung cancer from their asbestos exposure in the military.
To learn more about The Mesothelioma Veterans Center, visit https://www.mesotheliomaveterans.org/veterans/ - MPN Advocacy and Education International
MPN Advocacy and Education International is dedicated to providing the knowledge, support, and resources patients will need as they adjust to living with an MPN through educational symposia in several cities each year, website access, free webcasts of each program, collateral materials, and direction to people, resources and other organizations that can help.
MPN Advocacy and Education International visits cancer centers and hematology groups and associations to grow awareness and engage physicians in smaller communities who may only see one or two patients with MPN, and who may not have the information available to them that their colleagues in larger cities and academic institutions can access. Patients with MPN who may never see a website or MPN specialist have limited knowledge about treatment options, clinical trials, and the available programs and resources. MPN Advocacy and Education International is dedicated to finding all portals to reach the entire MPN community to grow awareness, understanding, and a better quality of life while living with an MPN.
To learn more about MPN A&EI, visit www.mpnadvocacy.com. - National Cervical Cancer Foundation
NCCC was founded in 1996 as a grassroots nonprofit organization dedicated to serving women with, or at risk for, cervical cancer and HPV disease. In 2011, NCCC merged with American Sexual Health Association (ASHA), a nonprofit with a 100-year history of educating and raising awareness on sexual health issues. The NCCC has thousands of members around the world, and chapters across the U.S. NCCC’s sister organization, the Global Initiative Against HPV and Cervical Cancer, works throughout the developing world as a platform to empower people, communities and societies to reduce the disease burden from HPV and cervical cancers. Its mission is to help women, family members and caregivers battle the personal issues related to cervical cancer and HPV and to advocate for cervical health in all women by promoting prevention through education about early vaccination, Pap testing and HPV testing when recommended.
For more information about NCCC, please visit www.nccc-online.org. - Pancreatic Cancer Action Network
The Pancreatic Cancer Action Network (PanCAN) is dedicated to fighting the world’s toughest cancer. In our urgent mission to save lives, we attack pancreatic cancer on all fronts: research, clinical initiatives, patient services and advocacy. Our effort is amplified by a nationwide network of grassroots support. We are determined to improve patient outcomes today and to double survival by 2020.
Visit pancan.org for more information. - The Platelet Disorder Support Association
Since 1998, the Platelet Disorder Support Association (PDSA) has been successfully fulfilling its mission of enhancing the lives of patients with immune thrombocytopenia (ITP) and other platelet disorders through education, advocacy, research, and support.
Each year, PDSA serves tens of thousands of patients, caregivers, and medical professionals in more than 130 countries through its website, support groups, online discussion groups, educational booklets and research articles, patient hotline, and national patient conference. Our website provides people worldwide with the latest information through 200+ pages of free content; the 38 local support groups throughout the United States and Canada provide personal support to thousands of patients and help raise awareness among physicians by sharing our materials. We continue to bring attention to ITP through our newsletters and publications, National Walk/Run “Pump It Up for Platelets” events, National ITP Awareness Month, and “Sport Purple for Platelets Day.”
PDSA promotes patient-to-patient, patient-to-physician, and patient-to-medical provider communication and encourages patient involvement in treatment and lifestyle decisions. We have a history of assisting and supporting research in the treatment of ITP and other platelet disorders through surveys, studies, and collaboration with the National Institutes of Health, physicians, and researchers.
To learn more about PDSA visit www.pdsa.org. - The Sarcoma Foundation of America
The mission of the Sarcoma Foundation of America (SFA) is to advocate for sarcoma patients by funding research, by educating patients and caregivers and by increasing awareness about the disease. The organization raises money to privately fund grants for sarcoma researchers and conducts education and advocacy efforts on behalf of sarcoma patients.
Sarcoma is a form of cancer rare in adults, but rather prevalent in children, accounting for about 15 percent of all childhood cancers. Currently, over 50,000 people are living with Sarcoma and every year about 14,000 new cases are diagnosed with about 6.000 people dying from it.
Since its inception, the SFA has invested over $6 million in research; by awarding over 87 SFA Sarcoma Research Grants, managing the SFA-founded Sarcoma Patient Registry, and with the Conquer Cancer Foundation, awarding six Young Investigator Awards, two Advanced Clinical Research Awards, and one Career Development Award.
The SFA’s involvement in this initiative includes, but is not limited to, oversight and approval of curriculum (in collaboration with AXIS), printed brochure and resource listing (includes links to trusted websites) to be distributed to grand round participants, assistance with recruitment of the grand round series including AXISmeded.com link on Sarcoma Foundation website, and sending a link to the Sarcoma board of directors and clinicians in the Sarcoma Foundation database.
To learn more about the organization, please visit www.curesarcoma.org. - The Skin Cancer Foundation
Since its founding in 1979, The Skin Cancer Foundation has set the standard for educating the public and the medical profession about skin cancer, its prevention by means of sun protection, the need for early detection, and prompt, effective treatment. It is the only international organization devoted solely to combating the world's most common cancer, now occurring at epidemic levels.
Skin cancer is the most common cancer in the world, with more than 13 million cases diagnosed annually. One of every three cancers diagnosed is a skin cancer, and up to 65,161 people die every year from skin cancer. The incidence of melanoma continues to rise at a rate faster than that of any of the seven most common cancers.
Each year in the U.S. there are more new cases of skin cancer than the combined incidence of cancers of the breast, prostate, lung and colon. Almost 10,000 people die from melanoma in the U.S. every year. Nonmelanoma cancers such as basal cell carcinoma and squamous cell carcinoma have reached critical levels, with squamous cell carcinoma killing between 3,900 and 8,800 people each year.
Ninety percent of nonmelanoma skin cancers are associated with exposure to ultraviolet radiation from the sun. A person's risk for skin cancer doubles if he or she has had five or more sunburns. However, the incidence of skin cancer can be dramatically reduced through education, behavior modification, and early detection. Skin cancer is primarily a lifestyle disease which is why The Skin Cancer Foundation emphasizes public awareness and education campaigns.
For more information, visit www.SkinCancer.org. - The Tuberous Sclerosis Alliance
The Tuberous Sclerosis Alliance (TS Alliance) is a national voluntary health nonprofit dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected. We provide support and information for individuals and families living with the disease, raise awareness, advocate for federal TSC research dollars, and fund and drive scientific breakthroughs. TSC causes tumors to form on vital organs - the brain, heart, kidney, skin, liver and lungs - and is the leading genetic cause of epilepsy and autism. TSC affects 1 in 6,000 live births, 50,000 Americans and more than 1 million people worldwide. Through relationships with 49 TSC Clinics around the world—47 in the United States and 2 in Israel—the TS Alliance connects those affected with healthcare providers committed to providing the best possible care, and the TS Alliance serves as a conduit for sharing best practices and treatment guidelines among the TSC Clinics.
For more information, visit www.tsalliance.org. - URO Today
UroToday® publishes online articles on all Genitourinary topics organized by conditions, treatments, and evidence-based guidelines including GU oncology, men's health, voiding function and dysfunctions, stone disease, minimally invasive procedures and pediatric treatments. We also offer centers focused on urologic urinary catheters (indwelling and intermittent) and a knowledge base about catheter-associated urinary tract infections and tools to prevent these infections. UroToday also offers access to a broad area of investigative urology articles.
Our mission is to provide free, accurate, timely, evidence-based news and information to help healthcare providers stay up-to-date on relevant conditions and to patients for better understanding of symptoms and treatments – Empowering both groups to access evidence-based diagnosis and treatment solutions from anywhere in the world.
All editorial content is produced independently and without influence of advertisers or commercial supporters. The editorial team reserves the right to reject and advertising campaign or promotion it deems misleading or controversial. Physician reviewers are not provided information about advertisers or commercial supporters of the information they review. Original content contains writer bylines, and members of the editorial team are charged with reporting any conflicts of interest in all content. All articles are reviewed and approved by our editorial team of physicians.
To learn more about Uro Today, visit www.urotoday.com.